Blain Brothers: Sawyer & Daxton

Blain Brothers: Sawyer & Daxton's Story

The Blain brothers were born on January 6, of 2017 and 2019. Two years and just 10 minutes apart. Sawyer is a sweet and fun loving boy. He loves music and laughter. He loves being tickled, big expressive play, running freely, and exploring. He also enjoys short stories and snuggles. One of his favorite games is "blanket monster". Daxton is energetic and expressive. He loves to tinker and fidget. He loves cars and figurines. He can be persistent and is very caring. Apples and pizza are his absolute favorites.

Having the same birthday is not all that the Blain brothers share. Sawyer and Daxton were diagnosed with MPS II/Hunter syndrome in early 2020 at the ages of 3 and 1 year old. Diagnosis flipped their families world completely upside down. After isolation, and reservations lifted, determination and motivation set forth a mission. A mission to give these boys the best life possible. In order to execute this mission, their parents dove into researching, learning, collaborating, and advocating. Those efforts have resulted in many great things. One in which contributed to MPS II being added to the RUSP (Recommended Uniform Screening Panel). Another in which both boys started receiving an improved treatment of enzyme replacement therapy through a clinical trial. An “improved treatment”, NOT a cure.

So the mission continues through advocacy and active involvement. The Blain family proudly supports Project Alive and the betterment of our Hunter syndrome community and Cory, Sawyer and Daxton's mom, is actively involved and dedicated as a board member. Their mission will not stop. The Blain brothers parents thank you for visiting this page and greatly appreciate any support you can give. Because it surely takes a village and to them THEIR fight is OUR fight.