Back To News & Press All Press Project Alive Welcomes Dr. Kim Stephens as Emeritus Board Member Read More Project Alive Awards a $60,000 grant to MPS Superhero Foundation and Forms Formal Partnership Read More Project Alive and Action For Aidan partner with $400,000 towards scientific endeavors for Hunter syndrome Read More Project Alive Welcomes New Board Members and Chairman Read More Project Alive Releases Letter to the Hunter Syndrome Community Read More Project Alive's Inaugural Hunter Syndrome Family Fair and Casino Night Raises $68,000 for Research and Support Programs Read More Project Alive Welcomes Seven Members to the Scientific Advisory Board Project Alive, a Hunter syndrome research and advocacy non-profit organization, announces the addition of the Scientific Advisory Board. Read More Action for Aidan donates $200,000 to Project Alive This nonprofit, based out of New Hampshire, has tirelessly worked to raise money for Hunter syndrome research over the last four years. Read More Project Alive Welcomes New Board Member, Adam Haas Project Alive, a non-profit organization dedicated to research and advocacy for MPS II, or Hunter syndrome, is pleased to announce the addition of Adam Haas to the Board of Directors. Read More Project Alive Welcomes New Board Members and the Addition of Kyle Underwood as VP Project Alive is thrilled to announce the new additions to the 2023 Board of Directors along with a new Vice President Read More Project Alive Welcomes New Executive Director The Project Alive Board is pleased to announce that Kristin Stockin has been hired as Executive Director of Project Alive Read More Project Alive Welcomes Five New Board Members Project Alive is pleased to welcome five new board members: Dave and Julie Ferrulo, Nathan Grant, Elizabeth Snarey, and Kyle Underwood. Read More Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive Read More Cyclists complete four state, 1200-mile journey Cyclists on a 1200-mile journey across four states to raise awareness of and funds for Hunter syndrome and Project Alive, cycling through North Carolina, South Carolina, Georgia and Florida. Read More Project Alive raises nearly $300,000 with #15byMay15; continues push to fund a cure Read More Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research Read More Project Alive president recognized with honors for work in rare disease research advocacy Read More Safety studies nearing completion in gene therapy drug trial The safety study is a necessary first step in the process of a gene therapy drug trial. Read More Dr. Kim Stephens becomes second Project Alive president Dr. Kim Stephens became just the second president of Project Alive in February 2021 Read More Dr. Kim Stephens gives a Project Alive update for 2019 Dr. Kim Stephens, president of Project Alive, gives an update and review of the accomplishments of the organization in 2019. Read More
