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First and Last Name
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Email Address
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How many of your children have/had Hunter syndrome? If you are an adult with Hunter syndrome, please write "self."
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Names of children with Hunter syndrome
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DOB (MM/YYYY) of children/adults with Hunter syndrome
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Date of passing if applicable (MM/YY).
Which form of MPS II does your child/ren or yourself have?
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Attenuated
Neuronopathic (previously known as severe)
Treatments received
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ERT
Stem Cell Transplant
Gene Therapy
Blood Brain Barrier Penetrating ERT
Itrathecal
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$30,001-75,000
$75,000-100,000
$100,001-150,000
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